Henrietta Lacks and Patient Privacy

Fact Question Response Organizer

Use this worksheet to keep track of your thoughts as you listen to the audio story. In the "Fact" column, record interesting or useful factual information you learn about the topic. In the "Question" column, write questions that occur to you as you listen. Finally, in the "Response" column, make a list of responses to the story, either as they occur to you or in relation to one of the facts or questions you’ve listed.

Language Identification Organizer

Listen closely and check off each sentence or partial sentence as you hear it.

• poor black woman named Henrietta Lacks died of cervical cancer in Baltimore
• cultured it without her or her family's knowledge
• published the HeLa cells' genome, again without the family's knowledge
• contain within them the original information that Henrietta was born with
• potentially have their privacy at risk by the complete, open publication
• cells have been used for all manner of important medical advances
• see a collision of deeply held fundamental principles in research
• provide information about what their research plans were and to have a group
• why couldn't somebody else just do their own genome
• Respect the wishes of the family, and not seek to go around this decision.